The Ryan’s Quest Foundation has an exciting opportunity for you. We will host our Annual Valentine Ball on Saturday, February 14, 2015! This semi-formal gala will take at the Westin Princeton in the Forrestal Village from 7 p.m. to midnight. Why not spend your Valentine’s Day with someone special while supporting Ryan’s Quest!
This is the Foundation’s signature event, sponsored by First Choice Bank. The evening includes live entertainment, a land and sea duet dinner, open-bar, dancing with live performances by The NERDS, contest/raffles, an amazing dessert display, a silent auction and MORE! The ticket price is only $135 per person! In addition, the Westin Princeton has arranged for discounted room rates when you mention you are a guest of this event. You can purchase your tickets online now at www.ryansquest.org.
The mission of Ryan’s Quest is to increase awareness of Duchenne muscular dystrophy, with the purpose of allocating funds for research that has the greatest potential of finding a cure or treatment for this disease.
Ryan’s Quest is primarily focused on supporting research for near-term, potential therapeutics. We are also interested in helping support families that are enrolled in clinical trials.
Duchenne muscular dystrophy is the number one lethal genetic disorder in childhood. It affects 1 in every 3,500 births. 50 percent of all cases of Duchenne are the result of a spontaneous genetic mutation — meaning it could happen to anyone.
Boys with Duchenne lose the ability to walk between the ages of 8 and 10. (Ryan turns 9 this year). They typically require respiratory support by their late teens and survive only into their 20s.
Duchenne is invisible to the human eye because it lives within the bodies of seemingly healthy children. However, it slowly and painfully tears away the muscles of those it targets and strips them of their independence.
Seven years ago we founded Ryan’s Quest in hopes of speeding research efforts in this disease. With the community’s support, we have funded more than $1.4 million and have helped establish the Duchenne Alliance; which consists of more than 20 organizations worldwide.
The alliance was formed to create a faster, more effective and streamlined way to move research for Duchenne out of the labs and into the patient population. The funds received through Ryan’s Quest are directed, in full, to Duchenne muscular dystrophy research. Ryan’s Quest bases all decisions regarding the awarding of funds to research projects, after the project is submitted to the Duchenne Alliance review process, which is rigorous and transparent.
Ryan’s Quest, Box 2544, Hamilton 08690. www.ryansquest.org or www.duchennealliance.org. 609-947-3611.